Please help me spread awareness of Spinal Muscular Atrophy which effects 100 babies born each year. 1 in 50 of us carry the gene which causes SMA. When both parents carry this gene they have a 25% chance of having a child with SMA. Help spread awareness: it could be you and your child affected.
I am currently living an unfamiliar life with a disabled child and managing somehow to make it wonderful, despite wanting to wake up and realise it was all a bad dream. I'd like to think that I don't hide from the truth so take me straight, without ice and knock back a glass of the good stuff.